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Viewing entries tagged with 'ethics'

Decision polarity and the space in-between – reflection on the Charley Hooper situation

Posted by Philip on 30 October 2015, 8:07 am in , , , , , , , ,

I am concerned by the ethical argument brewing between the parents of Charley Hooper — who have finished a series of surgeries and hormone therapy to contain her growth and development — and disability/human rights advocates like Disability Rights Commisioner Paul Gibson — who has said the procedure was "unnecessary" and "inconsistent with the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD)."

The Hoopers say they have "no regrets" about stopping the growth of their daughter — who "has less control over her body than a newborn, with no head control and no purposeful movement of any limbs. She is blind and does not recognise anyone, including her parents." The procedure has also stopped Charley from having 200 seizures per day and has resulted in her smiling for the first time.

Gibson is calling for a law change to protect the rights of disabled children as a result of the Hooper situation. But whose call is it to define the "rights" and "protection" of children in circumstances such as this?

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Neo-freedom. Licence or lax?

Posted by Philip on 6 June 2013, 8:00 pm in , , , , ,

It's often that I struggle to know the answer. I'm used to it and, mostly, I need to work out the next question.

This week, I've floundered to know what I think and that's been disquieting. In fact, I've had to discuss this issue with several people in order to feel clear enough to write this.

Even as I write, I'm not sure I'm right. But, as I said to one of those with whom I engaged in discussion, this is a difficult conversation – one that someone has had the courage to start it and to which I would be cowardly not to respond.

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