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Viewing entries tagged with 'disability'

Talking Individualised Funding on Radio New Zealand

Posted by Philip on 6 August 2012, 3:56 pm in , , ,

I spoke recently to Carol Stiles, from Radio New Zealand's One In Five programme, for her episode on Individualised Funding.

You can listen on the player below or visit the programme's page on Radio New Zealand's website.

From 00:13:44, I talk about the difference between employment systems and relationships, as well as the need for constructive, rather than punitive, auditing.

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Family supporter payments: use the 80-20 rule

Posted by Philip on 1 August 2012, 5:40 pm in , , ,

Since the Government accepted the Court of Appeal ruling that their policy to not pay family members to support disabled relatives was, in fact, discriminatory under the Human Rights Act, an advisory group has been set up to work out how much to pay them.

I wonder how much taxpayers' money that will cost.

Were bureaucrats and politicians to act in a sensible and pragmatic manner, they would use the 80-20 rule. Wikipedia explains that "the Pareto principle (also known as the 80–20 rule, the law of the vital few, and the principle of factor sparsity) states that, for many events, roughly 80% of the effects come from 20% of the causes."

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As Love Draws Near

Posted by Philip on 12 July 2012, 6:31 pm in , , , , , , ,



Buy the single on Amplfier Buy the single on Amplfier


"As Love Draws Near" tells the story of how we all have the opportunity to move from fear to love by removing the labels that tie us down. The core message of this video is to encourage people to engage in social change and for individuals to accept diversity and who we really are.

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IF only: reflections on individualised funding

Posted by Philip on 7 July 2012, 3:23 pm in , ,

My intentions to blog each day from the Individualised Funding conference I attended a couple of weeks ago were somewhat thwarted by memory and access to technology. It's always harder to type away from the old desk.

But, after a week to digest my thoughts, I will hopefully have created a more distilled reflection on this minefield of change happening on a global level in the paternalistic quagmire of disability support.

A change in the business model

At the heart of Individualised Funding (IF), called different things around the world (Direct Payments in the UK, Individual Budgets in the US and 'self-managed' and individualised services in Australia), is a change in the business model of funding disability support.

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Individualised Funding: Systems Not Services; People Not Process

Posted by Philip on 29 June 2012, 6:30 pm in , , , , ,

I presented this workshop: "Individualised Funding:  Systems Not Services; People Not Process", at Imagine Better's Individualised Funding conference this week.

More reflections to come.

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Health minister fudges family figures

Posted by Philip on 13 June 2012, 4:34 pm in , , ,

Hon Tony Ryall, speaking on Radio New Zealand this morning, clearly omitted to tell the other side of the fiscal impact of the government's decision not to appeal the Court of Appeal decision in the Ministry of Health v Atkinson & Others Family Carers case.

Ryall said the cost of paying families will rise as more family members opt to be supported by their relatives. However if, as he said, these people were assessed as eligible for funding, the money would need to be allocated anyway. What he didn't say was that the money would either go to a non-family member or a residential home instead.

He also didn't say that, if a person eligible for funded support chose to leave a residential home in favour of family support, the money would go from the residential home to the family. Nor did he mention that it is ministry of health policy to encourage community over residential living and that, over time, the fiscal implications of losing the critical mass of demand for residential homes will save significant amounts spent on the administration of such homes.

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Speaking of backing down...

Posted by Philip on 7 June 2012, 8:02 pm in , , ,

The Government has backed down on its ridiculous decision over education after 13 days. It might see fit to do the same about its equally stupid decision to continually appeal against its discrimination against family supporters of people experiencing disability, which it has been doing for nearly three years.

Perhaps Minister Ryall could have a cup of tea with Minister Parata. She could tell him it's ok to get it wrong.

No tape recorders please.

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Still proud after 24 years

Posted by Philip on 17 May 2012, 7:55 pm in ,

I've changed my look and language over the years but I was struck by the similarity of my philosophy captured by the Crippled (sic) Children's Society (now CCS Disability Action) Access magazine in 1987. 

Thanks to Alex Smith for the nostalgia...the actual clipping appears below.

"We must be proud...”

Pride in one’s disability is an important aspect in Philip Patston’s philosophy of what is required for people with disabilities to succeed in achieving their goals in life.

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Agreeing on not instead of what

Posted by Philip on 24 April 2012, 9:51 am in , , ,

Following a bit of a stoush on Face(off)book last night after I objected to John Campbell's use of the term 'intellectually handicapped workers', one thing seems clear to me. In this complex, ever-changing world, we cannot always expect to agree on what is ok to think, say or do.

What is often more realistic and possible, though, is to agree on what is not ok to think, say or do. In the world of organisational governance, it's known as a 'limitations policy' – anything is ok except this, that and the other.

Admittedly, I made the mistake of suggesting an alternative term –'workers who experience intellectual disability'. This incited a social networking riot about the word 'experience' and gave licence to everyone to bid for their favourite terminology, which totally detracted from my point:

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TVNZ Sunday uncovers ironic truth

Posted by Philip on 11 April 2012, 7:15 am in , , , , ,

A recent TVNZ Sunday online promo reads:

The price of life

They are the babies born in the 23rd week of pregnancy and they exist on the very edge of life. They are born so prematurely their survival stretches science to the limit. Is it medicine at its most pioneering and brilliant, or is it pushing the limits of nature too far? Is it always right to keep these babies alive? Sunday has unprecedented access to an intensive care neo-natal unit to follow these babies in their struggle to survive.

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