DiversityNZ logo

Viewing entries tagged with 'constructive'

Decision polarity and the space in-between – reflection on the Charley Hooper situation

Posted by Philip on 30 October 2015, 8:07 am in , , , , , , , ,

I am concerned by the ethical argument brewing between the parents of Charley Hooper — who have finished a series of surgeries and hormone therapy to contain her growth and development — and disability/human rights advocates like Disability Rights Commisioner Paul Gibson — who has said the procedure was "unnecessary" and "inconsistent with the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD)."

The Hoopers say they have "no regrets" about stopping the growth of their daughter — who "has less control over her body than a newborn, with no head control and no purposeful movement of any limbs. She is blind and does not recognise anyone, including her parents." The procedure has also stopped Charley from having 200 seizures per day and has resulted in her smiling for the first time.

Gibson is calling for a law change to protect the rights of disabled children as a result of the Hooper situation. But whose call is it to define the "rights" and "protection" of children in circumstances such as this?

Continue reading...

Rethinking for scrutiny, not to be right

Posted by Philip on 17 May 2014, 11:27 am in , , , , , , , ,

it's a new ideaFor about seven years I've guest lectured in the Concepts of Rehabilitation paper at AUT University. The students come from a wide range of disciplines including physiotherapy, chiropractics, nursing and occupational therapy.

I ask that students prepare by reading my journal article, Constructive Functional Diversity (CFD), which quite radically challenges the binary notion of disability and non-disability, and suggests new language for the mainly medicalised ideas behind rehab. It also challenges the focus of functional improvement in favour of considering functional value instead.

Then we have a 90-minute conversation.

Continue reading...

Loading...